The Duchenne Registry

Patient registry app for people with Duchenne or Becker muscular dystrophy and carriers.

iOSNewAccount requiredApp Store★ 5.0 · 5 ratingsfree

A free mobile patient registry for people with Duchenne or Becker muscular dystrophy and for carriers that lets patients, parents, and guardians contribute health information to research. It addresses the difficulty of connecting patient data to muscular dystrophy studies by providing a single place to share relevant information. Intended for affected individuals, carriers, and their family caregivers.

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